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Showing posts from August, 2015

Still hanging...

I've been playing phone tag with the genetic counselor. Well, mostly it's been me leaving him messages and then the one time he called me back, my phone must have been in a dead zone because it didn't ring, and then suddenly had a voice mail with no missed call. And of course it was at 4pm on Friday so do you think the guy answered his phone when I called him back? Of course not. His voice mail said, "There are some results I want to discuss with you." which I assume and hope means that there is more to the results than "normal" and that it's not another "well, we found XYZ but we don't know the significance of that, if any" because I'm so over those.

My mission in life this week (aside from taking little girls to appointments) has been to purge all of the excess clothing out of our house. I'm pretty sure that clothing is reproducing in dark corners of our house because that's the only way I can fathom how we have the amoun…

Sure, go ahead and leave me hanging

Words escape me to describe how this week has been. The usual choices of "insanely busy" and "exhausting" and whatever else I would normally say just don't do it justice. I won't even try to explain it all but there are some important highlights.

1. We saw our former neurologist, who left the hospital-affiliated practice a couple years ago. I decided it was time to follow her, because I like the way she thinks, and I like the approach she takes with kids like Raya. The results of that appointment are that we are finally having the sleep study done that the hospital neuro clinic was supposed to have done a year ago and never called me back to schedule, even after I left multiple messages. We are also having a huge list of labs done to check things we haven't looked at in a couple years, and several things we've never looked at at all. We also have a referral to a naturopath in the area who may be able to help us look at things in a different way. We …

Week 1 of kindergarten: DONE!

Raya's first week of kindergarten is in the history books! Due to a lot of hard work by a lot of people, everything went about as smoothly as it could have. Sunday afternoon, we packed everyone's backpacks with the rest of the school supplies that I had bought late Saturday evening. Normally it would give me anxiety to wait that long but it came down to a choice between taking a bunch of kids school shopping with me in the middle of the day when everybody else and their kids are school shopping, or waiting until Saturday evening to do it by myself. One by one, I sat down with each kid and checked off everything on their lists. (Except for the Kleenex. Had I bought the number of boxes of Kleenex requested by each kid's list, we would have been carting about 15 boxes of Kleenex to school on Monday. Ain't nobody got time fo' dat.) Sunday evening, we continued our tradition of having Donny give the kids father's blessings to help prepare them for the upcoming scho…