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How-To

Please remember that any information on this page is for informational purposes only and is NOT intended to replace proper training from medical professionals.

*For questions about anything on this page, please feel free to email me (Brandis) at feedingraya@yahoo.com


How to make a weighted stuffed animal for Sensory Processing Disorder

How to make a weighted blanket for Sensory Processing Disorder


How to put a G tube into a doll or stuffed animal


How to Place an NG Tube
When Raya got her first NG tube, I was trained at the hospital on how to put it back in in case it ever came out. I had NO idea how many times I would be putting it back in over the 6 1/2 months that she had it! (about 62, in case you were wondering) I have 3 videos of me putting the tube in so I thought I'd share them.
Please keep in mind that although it looks like I am sitting on top of her (which I kind of am), I never put my weight on her. Once she had been tube-fed for a couple months, she started to grow & get stronger and if I didn't use my knees to keep her arms still and sit over her, she would wiggle out and make it impossible to get the tube in. She was insanely strong for a little bitty thing and I was always very careful not to hurt her.
In the first video, I was putting in a brand new tube (the last one before she got her G tube) so I went into a little more detail about how to measure the tube for correct placement in the stomach, what adhesives we used and how we taped down her NG tube. The second video was later the same day because the little stinker pulled the tube out again. The third video is on a different day and from a different angle. For those of you who don't have a child with an NG tube, these videos might seem a little barbaric but will hopefully give you a little bit better understanding of what a tubie parent goes through on a daily basis.







How to Change a G tube (button-style)
For me, the only times that putting a G tube back in her has been stressful have been the times that it's gotten pulled out when she was supposed to be taking a nap and I don't know about it until after she wakes up and then have to work at it to get it back in and the time it got pulled out at the park right after the kids got off the bus and formula was gushing everywhere and I didn't have the syringe I needed to put it back in so we hurried home and I crossed my fingers that her stoma wouldn't close too much to get it back in. Moral of the story: never leave home without the syringe. :)
Without further ado, here's how we change Raya's G tube:
Here is a video of a routine G tube button change with Raya. These are MUCH easier and less traumatic for us than the NG tube replacements!! Having to change the tube at home or put it back in if it gets pulled out shouldn't be cause to freak out. It does need to be dealt with quickly, but don't panic or the whole thing will be much harder. And of course the first time the tube gets pulled out or has to be replaced is a little scary just because it's new, but once that first one is out of the way, it's much less intimidating.

How to modify a Zevex EnteraLite Infinity pump bag for gravity feeds or blenderized diet
How to use the Feed Interval setting on the Zevex EnteraLite Infinity pump

Popular Posts

Adhesives Part 1: Adhesives & Taping Techniques for NG tubes

This series has been a long time in the making. Back when Raya got her NG tube, I had no idea there were so many different adhesives on the market. At the hospital, they had used some kind of fabric tape in a box that had to be cut with scissors and that was the ONLY thing we accidentally left at the hospital. Raya caught her little pinky finger on the tube a couple days after we got home and the only medical tape I had ended up bringing home was Durapore. This tape is VERY sticky, very strong, and definitely not the best option for the tender little cheek of a 2 month old baby. A couple days later, we went to the GI doctor and the nurse saw the tape and told me that Duoderm would be much gentler on her skin and she gave me a couple of 6x6 sheets to try out.
That was the beginning of our trial-and-error process of figuring out which types of adhesives were better for all of the different things we used them for. This will of course NOT be an exhaustive review of every adhesive out the…

Sensory Processing Disorder: How to Make a Weighted Blanket

Lately I've been toying with the idea of making Raya a weighted blanket. She loves heavy things and has a lot of sensory seeking behaviors in regards to proprioception. Translation: she craves sensory input that helps her to gain awareness of where her body is in space, and it takes stronger than average input for her to get the feedback that her body is craving. (or at least that's how I understand it :) She seeks out "heavy work" activities, like carrying heavy things, pushing heavy things around on the floor (chairs, full laundry baskets, etc), and anything that gives heavy resistance to her muscles and joints. Lucky for us, carrying her backpack is a good heavy work activity because the poor kid gets to do that for a few hours a day. :)
The idea behind a weighted blanket and other heavy work activities is that when the child gains greater body awareness through proprioceptive input, the nervous system can be calmed and the need for constant fidgiting, moving, jump…

Feeding Tube Terminology: G tube words

One of the many things I didn't have a clue about before Raya got her G tube was the fact that there are LOTS of different kinds of G tubes, all with similar but different features & functions. Some of the terminology that was tossed around in the beginning was very confusing. When I met with the surgeon to pick out a button for when Raya's initial tube was ready to be changed, they pulled a bunch of tubes out of a cupboard, put them down on the table in front of me and said, "What kind do you want?" I had NO idea what to pick, all I knew was that anything would be better than what we had at that point.

Here are a few things I wish someone could have explained to me before Raya got a G tube:

1. What the heck does PEG mean?
PEG stands for percutaneous endoscopic gastrostomy. In other words, a gastrostomy tube is placed through the abdominal wall using an endoscope to visually guide the surgeon to the best location to place the tube. The term PEG is used to refer to …